"It’s hard to know that there is something out there that could help but they’re saying you can’t have it because of cost,” said Ms. Hardy, who now speaks for her husband of 45 years. “What price is life?”

This is really, really naive. Society makes decisions every day that effectively value human life: e.g. 45k people die on roadways in the United States and we aren't really doing anything about it.

In this instance, it is a completely straightforward question of how to allocate a scarce resource. We simply cannot spend an unbounded amount of the GDP on medical care, especially on prescription drugs many of which are sold for obscene margins even after discovery and trials and all that.

The Evidence Gap - British Balance Gain Against the Cost of the Latest Drugs - NYTimes.com